What Is Aphasia And Useful Links

People with aphasia find it hard to speak, read, write, understand language and use numbers.

At least 250,000 people in the UK have aphasia, most often caused by stroke, but aphasia can also be caused by head injuries or other neurological conditions. Aphasia is different for each person who has it, but it is often described as like having the word you are trying to find on the tip of your tongue all the time.

Everyday activities suddenly become a source of profound frustration and anxiety both for the person with aphasia and for their families, friends and carers. Without the proper care and therapy, people with aphasia can rapidly lose confidence, self-esteem, autonomy and independence. They can retreat into themselves, become frustrated, isolated and socially excluded and their quality of life is radically reduced.

As the only grant-making trust in the UK to focus solely on aphasia, the TTA is amongst those who are committed to ensure the best possible research is being undertaken and services and support developed for people with aphasia, their families and carers.

If you are looking for more information about aphasia, there are now several videos on the internet. Here is a sample selection that might be of interest:

Speechless is a documentary that tells the stories of two men, Junior Agogo and Barry, who can no longer use speech after suffering strokes. Much of the film is made in the Neurorehabilitation Unit of the National Hospital for Neurology and Neurosurgery in London’s Queen Square. Speechless available via the Wellcome Trust website.

Understanding Aphasia from Ffion Walker, the Director of Understanding Aphasia project in Australia

Aphasia Etiquette by the Stroke Association

Supporting Communication for Access and Participation by Simon Horton, University of East Anglia

If you are looking for aphasia organisations, the links below might be useful: